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Sunshine and Hope

Posted on October 29, 2011 at 2:40 PM Comments comments (0)

Sitting on the sofa this afternoon, hands clasped tightly around a mug of tea whilst gazing through the window, it suddenly dawned on me that British Summer Time ends tonight. The shorter days and longer nights are once again upon us. Unbelievably I can remember writing a blog post at this time last year; the months have sailed by at an alarming pace. Perhaps even more alarming is Christmas, looming like the grim reaper in the not too distant future. Sorry folks, for those of you who don...

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Tormented Souls.

Posted on July 25, 2011 at 9:54 AM Comments comments (1)

Amy Winehouse dead at 27. A premature end to the life of an extremely talented, yet hugely tormented soul.


I cannot help feeling incense at the many ill informed, judgemental, incompassionate comments which have appeared on my twitter timeline.


To understand pain you have to have felt pain, be it mental or physical; otherwise you can only assume you know. Assumption is arrogant. The depth of anguish one feels when driven towards any fo...

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Rhyme or Reason!

Posted on June 30, 2011 at 12:38 PM Comments comments (0)

There was a time when I was unsettled by unexplained phenomena; you know, the things that go bump in the night! The fear of the unknown use to scare the hell out of me, I hated the dark and would sleep with the landing light on, well into adulthood.


There’s so much about my life that defies explanation; I’m not a ‘bad’ person, I might have done some stupid things, made bad choices, but then who hasn’t? No matter how hard I try to reconcile all...

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Kindred Spirits

Posted on May 21, 2011 at 11:00 AM Comments comments (1)

I guess there are only SO many times you can say “No thank you, I can’t do that,” or “I’m sorry I’ll have to cancel today” to well meaning family and friends. Eventually they tire of your response and stop asking. The sceptics amongst them might even challenge your reason; with, “But you don’t look sick” or, “Surely you can?”


This is the harsh reality of life as a lupus sufferer, or indeed anyone who l...

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The Spark That Makes My Fire Grow.

Posted on April 6, 2011 at 12:19 PM Comments comments (0)

How delightful it would be to have Josh, my seventeen year old, greet every morning with the enthusiasm he demonstrated today! I guess a trip from Old Trafford to Stamford Bridge, the home of Chelsea Football Club on the supporters coach, is considerably more appealing than the hour bus journey into college. His passion for Manchester United is one that’s intensified since his first home game, at the age of three. A furore he shares with his older brother and Father. His Father, a ̵...

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A Dream Turned Reality!

Posted on March 16, 2011 at 10:56 AM Comments comments (0)

“As every bud of life appears I can relinquish all my fears, the welcome sight of blossom bloom casts aside all my gloom”


Spring has to be my favourite time of year; the dark cloud of winter slowly evaporates, lighter nights emerge and a renewed sense of optimism for the future is born. Winter is a challenging time for many, but living with a debilitating illness under the dark cloud of shorter days, adverse weather conditions, exacerbated symptoms and isolatio...

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The Wolf!

Posted on February 26, 2011 at 2:11 PM Comments comments (0)

I doubt I will ever understand this ‘thing’ they call Lupus, despite being affected by it for virtually all of my life! Systemic Lupus Erythematosus, hard to say yet even harder to live with. Sometimes called the ‘wolf’ the most misunderstood and misdiagnosed disease in the history of medicine. I should know, it took nineteen years to arrive at a diagnosis. Endless hospital visits, episodes of devastating ill health, wrongly being labelled as having ME. Eventually, aft...

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My Little Book!

Posted on February 6, 2011 at 2:14 PM Comments comments (1)

It’s late Sunday afternoon, almost dusk. The rain is lashing against the window, it’s cold, extremely windy and I’m glad I’m here; tucked up inside, tapping on my keyboard. There’s something comforting about being inside on a miserable day, especially when you close the curtains, light the candles and shut out the world. Soft music in the background, my keyboard and that little place in my head I call sanctuary! I have to admit I’ve arrived at the end of th...

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Bright Eyes.

Posted on January 13, 2011 at 8:04 AM Comments comments (0)

It’s hard to believe that mid January is upon us and Christmas is all but a distant memory. I for one, am relieved that it’s over; done, dusted and put back in the cupboard so to speak! My artificial tree was reluctantly resurrected after much deliberating as to whether I should erect one at all… I relented just in time for my older children’s homecoming, but by 1st January it was wrestled back into its box unclear as to whether it will see the light of day again…...

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The Grim Reaper And Better Things!

Posted on December 4, 2010 at 11:44 AM Comments comments (0)

Well, it arrived; like the grim reaper burying everything beneath its evil blanket of pretence! The Christmas card effect looks beautiful whilst looking out of the window, but for the elderly or infirm, snow isn’t a welcome sight. My plans for the week have been well and truly thwarted by the offending stuff. It’s difficult enough managing a debilitating illness which regularly has you prisoner in your own home for prolonged periods. The addition of treacherous weather really...

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